Forgotten Children of the AIDS Epidemic Shelley Geballe, Janice Gruendel, Warren Andiman

Yale Fastback Series
Publication date:
25 Jan 1995
Yale University Press
308 pages: 229 x 152mm

"Mommy, why can`t the doctors make you better?"..."You won`t be there, will you? Who`ll take care of me?"—Rachel, age 5

AIDS breaks the rules of dying. It strikes the young rather than the old, decimating families and devastating communities. It will leave as its legacy a generation of orphans—traumatized by multiple losses, isolation, stigma, and grief. By the turn of the century, more than a hundred thousand children and youth in the United States—and ten million worldwide—will lose their parents to AIDS.Written by professionals in medicine, law, social work, anthropology, psychiatry, and public policy, this volume is the first full-length look at the issues facing children whose parents and siblings are dying of AIDS: what children experience, how it affects them, how we can meet their emotional needs and help them find second families, how we counter the stigmas they face. Authors explore ways to promote resilience in these AIDS-affected children. Stories of the children and their caretakers, told in their own words, are woven throughout.Pioneering and practical, the book presents an action agenda and resource directory for our nation`s policymakers as well as for parents and those who work with children in both formal and informal settings.

This book is produced in conjunction with a video, Mommy, Who`ll Take Care of Me? Forgotten Children of the AIDS Epidemic, which will be shown on PBS and is also available from Yale University Press.

Shelley Geballe, J.D., a civil rights attorney with a speciality in child welfare and AIDS law, is in the MPH/PhD program at the Yale School of Medicine. Janice Gruendel, Ph.D., served as a senior government official in the State of Connecticut in health and child welfare and is vice president of Rabbit Ears Productions, a children`s multimedia production company. Warren Andiman, M.D., is professor of pediatrics and epidemiology at Yale University and director of the Yale-New Haven Hospital Pediatric AIDS Program.

"This timely, urgently-needed book, compiled and co-authored by experts in pediatrics, psychology, public health, public administration, and the law, is concerned with children in the AIDS epidemic who are at risk of being neglected and forgotten. Although timely and painfully at the cutting edge of our ignorance, this volume is also a fine repository of our best knowledge that will be an essential reference for years to come. It is also a marker for historians and clinical scholars who are concerned with preparing and planning for epidemics yet to come. We are indebted to the editors and contributors to Forgotten Children of the AIDS Epidemic because they have enabled us to apply our understanding in limiting damage to these children and in enlarging and advancing our knowledge about all children and their families. They have lifted our awareness to a level of sophistication and hope that is useful and worthwhile."—Albert J. Solnit, M.D., Commissioner Department of Mental Health State of Connecticut

"In ways that many would have never imagined only a few short years ago, AIDS is leaving an indelible mark on this nation and the world. Confronted by a society that is alternately indifferent and viciously hateful, children who have endured the illness and death of a parent, or more often both parents, to AIDS have at long last begun to be considered as a group, with distinct and urgent needs. Forgotten Children of the AIDS Epidemic combines the personal experience of these children and their parents with the insight of a broad range of professionals and will serve as an invaluable primer as we confront more often the problems of the orphans of AIDS."—Anthony Turney, Executive Director, The Names Project Foundation